Living life when you’re an 83 year old man taking care of a very disabled, but still cognizing 81 year old man is a challenge, to say the least. I try not to focus too much on our struggles; that’s just part of my general positive approach. However, sometimes we need to balance our presentation to the world.
Generally speaking, Stephen and Jym have got this down to a science. Stephen can walk very slowly once he’s on the walker, but he needs assistance when transferring to and from the walker—sink, chair, table or bed are the usual transfers. I manage all transfers, and three previous aides have failed to master them. He keeps having strokes, despite all the doctors and meds, and so we just adjust with each one.
Now that sounded grim, but we are far from unhappy here. We have our favorite TV shows and websites. Even though Stephen can’t use his computer anymore, by some miracle, he can still navigate the iPhone with a little help. He loves history and science, and the internet is full of online resources. I, of course, pound away at my Yamaha P-125 with its 88 keys and many voices. And we talk and get to the dining room still for dinner and conversation with other residents. He has an electric scooter, a “Jazzy 6.” We can get out on the residential patios here on nice days, but we haven’t figured out yet how to transport the Jazzy 6 elsewhere. Probably that’s just beyond my approaching mid-eighties fitness.
So we pass our days here. It’s a light and airy apartment, with great views. Mornings there is some kind of exercise and cleaning ritual. I shop online and can come up with a respectable breakfast/brunch. Afternoons are free except when various physical therapists and nurses come in. Naps are good most afternoons. Sometime there is a concert here in the afternoon. Dinner is usually edible and sometimes actually good. We are both news hounds, but also follow the public television programming and concerts on public radio.
But this one-day-at-a-time life is a fragile thing, and it doesn’t take much to disrupt it. One such disruption is the topic of today’s blog.